Dr. Appointments, Testing and Results

I have spent the last few weeks at Dr. Appointments, testing and getting my results on follow up visits.

I have had 3 EKGs, 1 regular stress test, 1 nuclear stress test, 1 echocardiogram and I wore a Holter monitor for 24 hours. The only results that are not back yet are the Holter Monitor.

I have mitral valve stenosis this was discovered about 12 – 14 years ago. Almost every year without fail I have gotten my yearly echo that is until I got breast cancer and then I had other priorities to take care of. No one should ever put off their yearly heart testing that was not very smart of me but I have no one to blame but myself.

Mitral valve stenosis is caused by Rheumatic Fever but I never had that as a child or an adult. This was verified with my parents. Think of stenosis as a hose that is being stepped on and blood can not flow through the valve properly there is leakage spewing and backflow.

My mitral valve is what they call Moderate/ Severe, there is moderate regurgitation or leakage, as well as my Left Atrium,  is now enlarged. There is an estimated right ventricle systolic pressure of 45 – 50 mmHg. I am sure this will be verified by a heart catheter in the very near future.

The symptoms that this causes me are cough, chest pain, and soreness like a bruised feeling as well as dizziness and fatigue.

The Cardiologist says right now we have to get my pulse rate down to around 50 it runs 74- 80. To do this we have decreased my thyroid medication, changed BP meds to a channel blocker 2 x a day. He even added Lasix even though I am not retaining fluid he thinks there is fluid we are not seeing. All these things will ease up the pressures around the heart and hopefully help some of my symptoms.

On top of all this, I have lung issues emphysema and asthma so my lungs are not in the best shape.

In order for me to have Mitral Valve Replacement surgery the heart and the lungs have to be in the best shape, we can get them with medication. With getting an artificial valve replacement I will have to be on 2 blood thinners for the rest of my life.

I have a pulmonologist appointment this Friday and we will see if there is anything else we can do for my lungs to get them ready for this surgery.

Hopefully, by January this surgery can happen. It is open heart surgery which means more recoup time for me. The thought of cracked ribs scares me to death as well as being put on a heart-lung machine but I am trying to stay calm and not overreact.

I am sharing my story with you all in the hopes I can help someone else. I want others to learn through my experiences and I will do my best to keep everyone updated as new things happen.

Food Sensitivity and Intolerance Testing

Recently I did the Platinum Food Sensitivity and Intolerance Test with 850 Items Tested. The cost was $50.00.

The company I used was on Groupon and it was “Check My Body Health”. It was fairly simple you sent in a sample of hair. I advise letting someone else cut underneath your hair.
I cut way too much lol.

A few weeks later you are emailed your results.

Some of mine I already knew even though I was never allergy tested as a child.

It gives you food sensitivities and I have a lot of high reactivity ones and quite a few moderate ones.

Every Apple on the market, all varieties of bread, green beans, lima beans, mushrooms YUCK do not eat those things, butter, yogurt, sour cream all milk cow, goat or sheep, every cheese, Coconut, Lemonade, Lemons, White Wine, Red Wine, and Beer. Good thing I don’t drink.

Non – Food Sensitivities” Pine Trees and Scottish Pine, Ampiccilloyl and Penicilloyl, Mosquito, Colonial Bent Grass
I am allergic to 8 antibiotics so that makes sense with the Amp and Pen and the pine trees I knew since I was a kid.
A lot were listed in the moderate section.

Metal Sensitivities Nothing in the high but lots listed in the moderate to many to list.

Digestive Health – Amylase, Lipase, Pepsin It said no digestive enzymes were identified as being normal wow I feel so special.

Additives: Polydextrose, Brown FK, Stearyl Tartrate, Sodium Cyclamate

Gut Health- all my good strains of bacteria are all low which also makes me feel so special.

Vitamins A – K – Vitamin B6 Low

Minerals and other Nutrients it said I was low in Chromium, Magnesium, Phosphorous,
Beta Carotene, Betaine, Bio- Flavonoids, Bromelain, Creatine

For the foods, it says to try an elimination diet and slowly add things back in to see what happens.

I have a copy printed out for the Dr.s that way they can further test what they want to test.

I am taking the B6 and added Digestive Enzymes I started those on Monday.

I suggest anyone that has issues check out this testing there are several levels you can do but I wanted the whole picture.

Low does CT Lung Scan

I had my low dose CT lung scan # 3 on Tuesday.

This test is a breeze to do maybe 10 minutes at the most but its waiting for the results that is the hardest part. I think that is because I have had breast cancer and I know that there is a chance for recurrance the first 5 years.

I see the pulmonologist later this month for the results of the CT lung scan and my breathing issues. The 2 inhalers and the Asthma medication seem to helping I no longer feel like I am suffocating.

CT Low dose lung screening

This is for anyone who is currently smoking or has ever smoked this could also be used for those who were around secondhand smoke.

I quit smoking 10 – years ago but smoked for many many years.

There are many new studies showing that a low dose CT scan can find early lung cancer as small as a grain of rice.

I had my LDCT done on Monday and I see a pulmonologist next week to explain the results to me. It was literally a 5-minute test and no tunnels that is a big plus. Our insurance paid for it at 100% so there was no out of pocket.

This American Cancer Society recommends yearly screening for lung cancer for people who are 55 – 74 years old. If you are a current smoker or a smoker who has quit in the last 15 years.  If you have a 30 pack a year smoking history.

Tell your Dr. you are interested in doing an LDCT scan. It could increase the quality of your life or possibly find early cancer.

 

 

On a good note

I was very lucky my oncologist ordered the Oncotype – DX testing on my breast cancer tumor.

This tested for over 20 genes and it lets them know some important stuff such as chemo would only decrease my chances of not getting cancer again in 5 years by 1%. That little detail let myself and the doctors decide it was not worth the side effects for 1%.

I am grateful for this new testing for breast cancer because without it I would have had to do chemo.

Today I had to pre- register at the hospital to get the chemo port taken out since it will not be needed. That will be done this week and its a 10 minute thing.

I then went to the radiologist/ oncologist appointment to get molded for the position I will be in each time I receive radiation so they are sure I am in the exact same position each time. While I was there they did a CAT scan that was an easy test since I can see out both ends. I can not do a MRI.

The Dr. will now configure up everything to pinpoint the exact locations for my chemo. They are targeting the breast and the lymph node chain.

They gave me some tiny little tatoo’s that felt like a tiny needle that helps with the locations.

Next week I should be starting radiation and this will go on for 5 weeks x 5 days a week  I was able to reduce it by 1 1/2 weeks with my second surgery.

Life is good and I am so grateful to the wonderful people I have in my life. Your support has meant everything to me.

I am still fighting like a girl.

Fight Like a girl

 

 

 

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